Dexcom Day

So after giving in and waiting for the individual funding process/decision from the NHS Trust. We have decided to self-fund Dexcom for a few months to get a feel for it and get some numbers together to further help with the individual funding case with the Trust.

First impressions are really good, very simple clear instructions, very user friendly app which guides you through each step of the insertion and configuration.

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William on the other hand was far from impressed about having this thing attached to his arm. No tears or major pain from the insertion just a little moan and manly complaining about what was now semi-permanently attached to his arm, nothing that a bribe of Calpol couldn’t resolve.

We are now two days in and hes accepted the fact that this is now part of him and will be attached to him for a very long time; i suppose its like a tattoo or piercing, slightly annoying and weird at first but you soon forget that its actually there.

The thing he has yet to adjust to is no longer having finger pricks to check his blood sugar levels, its been part of the routine for the last 6 months its hard for him to understand why we have stopped all of a sudden.

The Numbers at the moment are shocking, it seems like the week we decide to set this up is the week we are having numbers from hell even just looking at the times we would manually check. Hes just bouncing from high to low back to high. Some of these would have been missed without and has made me realise how many hypos/hyper’s we have actually missed especially as he has no awareness of what his bloodsugars are doing.

We are trying not to micromanage or make any major adjustments over the first week to try and get a real understanding of what his blood sugars are doing especially around meal times and when he is at pre-school. Its making me see the real benefit of a pump too being able to temporary decrease/increase his background insulin when needed to keep his BS more consistent and i’m sure ill go into more details when we get the pump.